Sunday, January 21, 2007


This blog has two purposes:

1. Letting everyone in the family know what's happening with Demeter, in more detail than we might have time to give on the phone.
2. To serve as information for the parents of other babies with congenital heart defects, so they have an idea of what to expect before surgery, and during the recovery period.

Demeter has two holes in her heart - an ASD and a VSD. The VSD is supracristal, the rarest kind of VSD in the western world. This type of VSD rarely closes on its own, and Demeter's is especially large. The cardiologists (at CHEO) plan to do open heart surgery on her fairly soon; we are waiting for her to get bigger, and for her to show symptoms of congestive heart failure.

1 comment:

Traci Lisa said...

I think your blog is great!
My name is Traci and my daughter Cassidy was born with Tetralogy of Fallot w/ Pulmonary Atresia. My husband and I recently started a jewelry company to bring awareness to CHD's. We would appreciate it if you could help us get the word out about our new business. The site is:
Thank you so much!
Traci Lisa
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